University of Helsinki
Snell, Karoliina & Tarkkala, Heta & Tupasela, Aaro (2021) A solidarity paradox – welfare state data in global health data economy. Health.
Snell, Karoliina & Tarkkala, Heta (2021) “Here comes Bio-me” An analysis of a biobank campaign targeted at children. Public Understanding of Science.
Milan, Sanna & Snell, Karoliina & Sajantila, Antti & Kere, Juha (2021) Geneettinen sukututkimus yleistyy nopeasti. Näkökulmia. Lääkärilehti. 76(3): 106 – 107
Snell, Karoliina (2020) Henkilökohtaisten terveystietojen hyödyntämisen oikeutukset: Onko vihdoin aika keskustella ehdoista ja rajoista? Tiedepolitiikka 45(4): 16-21.
Snell, Karoliina (2020) Toimiiko genomitieto lääkärin päätöksenteon tai potilaan apuna? LSV-tiedotte. Lääkärin sosiaalinen vastuu ry. 2/2020: 20-21.
Tupasela, Aaro & Snell, Karoliina & Tarkkala, Heta (2020): The Nordic data imaginary. Big Data & Society.
Snell, Karoliina & Helén, Ilpo (2019): “Well, I knew this already” – Explaining personal genetic risk information through narrative meaning-making. Sociology of Health and Illness. https://doi.org/10.1111/1467-9566.13018
Salokannel, Marjut & Tarkkala, Heta & Snell, Karoliina (2019): Legacy samples in Finnish biobanking – social and legal issues related to the transfer of old sample collections into biobanks. Human Genetics 138(11-12):1287-1299.
Snell, Karoliina & Tarkkala, Heta (2019): Questioning the rhetoric of a ‘willing population’ in Finnish biobanking. Life Sciences, Society and Policy. 15(4)
Snell, Karoliina (2019): Health as the Moral Principle of Post-Genomic Society. Data-Driven Arguments Against Privacy and Autonomy. Cambridge Quarterly of Healthcare Ethics. 28(2): 201-214.
Raivola, Vera & Snell, Karoliina & Helén, Ilpo & Partanen, Jukka (2019): Attitudes of blood donors to their sample and data donation for biobanking. European Journal of Human Genetics. 27: 1659–1667 https://doi.org/10.1038/s41431-019-0434-1
Tarkkala, Heta & Helén, Ilpo & Snell, Karoliina (2019): From health to wealth: The future of personalized medicine in the making. Futures 109:142-152.
Lehtimäki, Hanna & Helén, Ilpo & Snell, Karoliina & Eriksson, Päivi & Montonen, Tero (2019): Sustainable Value Creation in Commercialization of Innovation: The Case Auria Biobank. International Journal of Entrepreneurship and Innovation Management 23(5): 451-465.
Snell, Karoliina (2018):
– Ryhmäkeskustelut genomitiedosta. Raportti genomikeskustyöryhmän käyttöön. Sosiaali- ja terveysministeriö, Raportteja ja muistioita 34.
– Focus group discussions about genomic data. Report for the use of the Genome Centre working group. Ministry of Social Affairs and Health, Reports and Memorandums 38.
– Gruppsamtal om genomdata. Rapport för användning av arbetsgruppen för genomcentret. Social-, och Hälsovårdsministeriet, Rapporter och promemorior 37.
Raivola, Vera & Snell, Karoliina & Pastila, Satu & Helén, Ilpo & Partanen, Jukka (2018): Blood donors’ preferences for blood donation for biomedical research. Transfusion 58(7):1640-1646.
Snell, Karoliina (2017): Mitä suomalaiset tietävät biopankeista? Lääkärilehti 72(36):1944-1945.
Snell, Karoliina & Helén Ilpo (2017): Tietojärjestelmät, genomitieto ja lääkärien asiantuntijuus. Duodecim 133(8):801-7. [Information systems, genome knowledge and expertise of doctors]
Tupasela, Aaro & Snell, Karoliina & Cañada, Jose (2017): Rethinking Therapeutic Misconception in Biobanking – Ambivalence between Research and Treatment. Science & Technology Studies 30(1):25-39.
Lehtimäki, Hanna & Helén, Ilpo & Snell, Karoliina Eriksson, Päivi & Montonen, Tero (2016): Commercialization of Biobank Data: The Case Auria Biobank. In: Sardana, G. D. & Thatchenkery, T. (eds.): Organization Development Through Strategic Management. Bloomsbury Publishing India. PP 9-17.
Cañada, Jose & Tupasela, Aaro & Snell, Karoliina (2015): Beyond and within public engagement: a broadened approach to engagement in biobanking. New Genetics and Society. 34(4): 355–376
Tupasela, Aaro & Snell, Karoliina & Cañada, Jose (2015): Constructing populations in biobanking. Life Science, Society and Policy 11(5).
Tupasela, Aaro & Snell, Karoliina & Cañada, Jose (2015): Patients, business and the state – translating health information into sustainable benefits – Policy brief for engagement practices in Canada, Finland, Iceland, Spain, UK and the US. Tekes Review 322/2015, Helsinki.
Gaskell, George & Gottweis, Herbert & Starkbaum, Johannes & Broerse, Jacqueline & Helén, Ilpo & Hobbes, Abby & Koten, Van Reinout & Pashou, Maria & Snell, Karoliina & Soulier, Alexandra (2013): Publics and biobanks: Pan-European diversity and the challenge of responsible innovation. European Journal of Human Genetics, 21(1): 14–20.
Lauß, George & Bialobrzeski, Arndt & Korkhaus, Matthias & Snell, Karoliina & Starkbaum, Johannes & Vermeer, Andrea & Weigel, Jukka & Gottweis, Herbert & Helén,Ilpo & Taupitz,Jochen & Dabrock, Peter (2013): PrivateGen. Beyond genetic privacy: Past, present and future of bioinformation control regimes. Final report. http://private-gen.eu/uploads/media/PRIVATE_Gen_FINAL-REPORT_2013_02.pdf
Teräväinen, Tuula & Snell, Karoliina & Gronow, Antti (2012): A transition towards Green Growth? Expectations and experiences from Finland. A case study for “Transitioning to Green Technology and Innovation: The Role of Supply and Demand-side Innovation Policies”, OECD.
Snell, Karoliina & Starkbaum, Johannes & Lauß, Georg & Vermeer, Andréa & Helén, Ilpo (2012): From Protection of Privacy to Control of Data Streams: A Focus Group Study on Biobanks in the Information Society. Public Health Genomics, 15(5):293–302.
Snell, Karoliina & Tupasela, Aaro (2012): Mitä mieltä suomalaiset ovat biopankeista? Duodecim, 128: 16, 1685-1690.
Helén, Ilpo & Snell, Karoliina (2012): Private Life in Bits and Pieces. Digital and Molecular Personhood in the Information Age. In Carucci, Margherita (ed.): Revealing Privacy. Peter Lang, Frankfurt. Pp.133-149.
Tupaslea, Aaro & Snell, Karoliina (2012): National Interests and International Collaboration: Tensions and Ambiguity Among Finns Towards Usages of Tissue Samples. New Genetics and Society, 31(4): 424-441.
Lauß, Georg & Snell, Karoliina & Bialobrzeski, Arndt, Weigel, Jukka & Helén, Ilpo (2011): Embracing complexity and uncertainty: An analysis of three orders of ELSA research on biobanks. Genomics, Society and Policy, 7: 47-64.
Tupasela, Aaro & Sihvo, Sinikka & Snell, Karoliina & Jallinoja, Piia & Aro, Arja R. & Hemminki, Elina (2010): Attitudes towards the biomedical use of tissue sample collections, consent and biobanks among Finns. Scandinavian Journal of Public Health, 38(1):46-54.
Snell, Karoliina (2009): Social Responsibility in Developing New Biotechnology: Interpretations of Responsibility in the Governance of Finnish Biotechnology. Academic Dissertation. Department of Sociology, University of Helsinki.
Hemminki, Elina & Tupasela, Aaro & Jallinoja, Piia & Aro, Arja R. & Snell, Karoliina & Sihvo, Sinikka (2009): Finnish people’s attitudes towards biomedical research and its sponsorship. Genomics, Society and Policy, 5(2):67-79.
Jallinoja, Piia, Sihvo, Sinikka, Hemminki, Elina, Tupasela, Aaro, Snell, Karoliina & Aro, Arja (2008): Luottavatko suomalaiset terveydenhuollon toimijoihin? Kansanterveys, 8, 26-27.
Tupasela, Aaro, Snell, Karoliina, Sihvo Sinikka, Jallinoja, Piia, Aro, Arja R., & Hemminki, Elina (2007): Väestön suhtautuminen lääketieteellisten näytekokoelmien uudelleen käyttöön ja biopankkeihin. Suomen lääkärilehti, 62(51-52), 4780-4782.
Sihvo, Sinikka & Snell, Karoliina & Tupasela, Aaro & Jallinoja, Piia & Aro, Arja R. & Hämäläinen, Auli & Hemminki, Elina (2007): Väestö, biopankit ja lääketieteellinen tutkimus. Suomalaisten suhtautuminen lääketieteellisten näytteiden käyttöön. Stakes. Työpapereita 18/2007.
Häyrinen-Alestalo, Marja & Snell, Karoliina (2004): Market Orientations and Mediation of Public Opinion in Finnish Biotechnology. In Häyrinen-Alestalo, M & Kallerud, E (eds.): Mediating Public Concern in Biotechnology. NIFU Rapportserie 2/2004, Oslo. Pp. 49-82.
Snell, Karoliina (2002): Biotekniikkapolitiikan kansalaiskuva: kansalaiset, kuluttajat ja ihmiset Suomessa ja Euroopan unionissa. Sosiologia, 39(4): 285-295.
Snell, Karoliina (2001): The weakening connection between education and research: study of three university departments. Science Studies, 14(1): 26-44.
Snell, Karoliina (2001): Laiminlyöty perustutkintokoulutus. Yliopistotieto, 2: 40-43.
Snell, Karoliina (2000): Yliopistokoulutus palvelemassa tiedettä, massoja ja markkinoita. Tutkielma koulutuksen ja tutkimuksen välisen suhteen heikkenemisestä. Julkaisematon pro gradu, Sosiologian laitos, Helsingin yliopisto.
Häyrinen-Alestalo, Marja & Snell, Karoliina & Peltola, Ulla (2000): “Pushing the Universities to Market their Products”. In Kalleberg, R et al. (ed.): Comparative Social Research. Vol 19. Comparative Perspectives on Universities. JAI Press, Stamford. Pp. 165–212.
Gueissaz, Albert & Häyrinen-Alestalo, Marja & Fischer-Bluhm, Karin & Snell, Karoliina (1998): “The Actors of Evaluation and the Decision to Evaluate”. In Pierre Dubois, P (ed.): EVALUE – Evaluation and Self-Evaluation of Universities in Europe. European Commission, Luxembourg.