ETUSIVU

Olet “Hauras toimijuus ja toiminnan sidokset” -tutkimushankkeen kotisivulla.  Tutkimushankkessa tarkastellaan monitieteisesti ihmisen elämän ja toiminnan haurauteen liittyviä kysymyksiä  ja hauraudelta suojaavia sidoksia nyky-yhteiskunnan eri alueilla. Tutkimusta rahoittaa Suomen Akatemia (2012-2017) ja tutkimuspaikkana toimii Helsingin yliopiston Sosiaalitieteiden laitos.

FORTHCOMING EVENTS – TULEVAT TAPAHTUMAT

CALL FOR PAPERS – HOW DOES VULNERABILITY MATTER?

How does vulnerability matter? An international seminar organized in Helsinki 30.11.-1.12.2017 by the Research project Vulnerable Agency (Academy of Finland) led by professor Marja-Liisa Honkasalo.

During the last decade, studies on vulnerability have increased enormously. When we started our research in 2012, vulnerability was a novel approach to studying agency – one of the most central concepts of sociology. Our aims were to 1) critically scrutinize the idea of ‘free choice’ from the point of view of health and illness; in this context agency is inescapably embedded – and vulnerable; 2) conduct ethnography amongst extremely vulnerable lives: the elderly in deficient home-care settings, people with serious drug addictions and people with technologically improved bodies and replaced body parts and, finally, 3) scrutinize the implications of vulnerability on agency and ask how vulnerability generates social ties and networks.

Since 2012, Finnish health care system has undergone an enormous change and similar developments have taken place in many other countries. ‘Free choice’ has become one of the most central slogans of the increasingly privatized health care market. The concept of vulnerability is vital in critical discussions on the limits of ‘freedom’ and ‘free choice’. Vulnerability has been widely used as a descriptive concept in the study of fragile life situations, socially excluded people and minorities and, e.g. dependent human beings and animals. However, this articulation of the concept has been criticized for being human-centered. The concept can also have a normative character, which refers to biological life, especially climate change and non-human lives. In a normative sense and from a Foucauldian take on productivity, vulnerability in current neo-liberal societies can also be understood as a vehicle for individualization and identity politics. Vulnerability has also been used as an ontological concept, a necessary feature of the human condition. This is probably the oldest meaning of vulnerability which has been extensively discussed e.g. in religious and ethical settings. When studying current societies, vulnerability as an ontological concept is frequently modified to serve political ends.

The purpose of this seminar is to look at the wide range of definitions of vulnerability. Does vulnerability matter? How? And, with such a wide range of articulations of it, is it in the danger of losing its meaning? Do the various articulations have common nominators? How can researchers of vulnerability communicate with each other? In addition, we invite papers, which discuss materiality, affects and mediations between social relations and the politics of vulnerability. We invite participants from all relevant subjects, such as social sciences, humanities and the arts, philosophy and medicine..

The keynote speakers include:

Professor Don Kulick, University of Upsala, Sweden: Vulnerability in human-animal relations

Academy researcher Heini Hakosalo, University of Oulu: Social Relationships and Tuberculosis in 20th-Century Finland

Tenure professor Kristiina Brunila, University of Helsinki: Ethos of vulnerability and the rise of psy-subjectivity

Deadline for abstracts is 20.9.2017.

Please send your abstract to:

marja-liisa.honkasalo@helsinki.fi

anna.leppo@krits.fi

Venue: The House of Science and Letters, Helsinki

Abstracts and bios:

Don Kulick: Human-animal communication

Since the demise in the 1980s of research by psychologists that attempted to teach human language to apes, a range of other perspectives have arisen that explore how humans can communicate with animals and what the possibility of such communication means. Sociologists interested in symbolic interactionism, anthropologists writing about ontology, equestrian and canine trainers, people with autism who say they understand animals because they think like animals, and a ragbag of sundry New Age women who claim to be able to converse with animals through telepathy have started discussing human-animal communication in ways that recast the whole point of thinking about it. I will chart how interest in human-animal communication has moved from a concern with cognition to a concern with ethics, and I will discuss the similarities and differences that exist among the range of writing on this topic.

Don Kulick is Distinguished University Professor of Anthropology at Uppsala University in Sweden, where he directs a large research program titled “Engaging Vulnerability”. He has conducted long-term fieldwork in Papua New Guinea, Brazil, and Scandinavia, and has published in a number of fields, including linguistic anthropology, sexuality and gender studies, and disability studies. His books include Travesti: sex, gender and culture among Brazilian transgendered prostitutes (1998); Taboo: sex, gender and erotic subjectivity in anthropological fieldwork (1995; with M Willson); Fat: the anthropology of an obsession (2005, with A Meneley); Language and Sexuality (2003, with D Cameron); Loneliness and its Opposite: sex, disability and the ethics of engagement (2015, with J Rydström), and most recently, The End: adventures with a dying language.

Kristiina Brunila: The ethos of vulnerability and the rise of psy-subjectivity

In the ethos of vulnerability tendency seems to be towards psycho-emotional vulnerabilities encompassing subjects that can be known and spoken about. More and more people are drawn into the sphere of an expanded agenda of psycho-emotional risks that no longer targets just specific groups but, increasingly, anyone. The ethos of vulnerability has come to play an increasingly decisive role in shaping cross-sectoral policies and educational practices. In this presentation some implications of the ‘vulnerabilizisation’ are considered in the field of education, which is a field currently thoroughly affected by neoliberalism. The presentation builds on the work done in previous research project Youth on the Move. Revisiting the vulnerability ethos in the era of market-oriented education (2014-2017) and in the on-going project Interrupting youth support systems in the ethos of vulnerability (2017-2021), both led by prof. (tenure track) Kristiina Brunila.

Kristiina Brunila works as a professor (tenure track) of social justice and equality in education in the AGORA for the social justice and equality in education -research centre, University of Helsinki. Her research group publishes widely related to policies and practices of education, social justice, governance, power, differences and agency.

Heini Hakosalo: Vulnerable Bonds – Social Relationships and Tuberculosis in 20th-Century Finland

This paper discusses vulnerability as a context-specific function of social relationships and societal structures, with tuberculosis as the historical example. For the first part of the 20th century, tuberculosis was a leading cause of death in Finland, and it remained a public health problem until the 1970s. The disease affected both adults, children and infants. A multisystemic infectious disease with protean manifestations, tuberculosis makes the individual body vulnerable at several points. Prior to the introduction of effective and affordable chemotherapeutics (1950-60), a tuberculosis diagnosis would signify a major break in the life course of an individual even if s/he survived the disease. A central function of 20th-century popular tuberculosis education, or “propaganda” in the parlance of the day, was to make people aware of their vulnerability to the disease and thereby more susceptible to expert advice. The focus of this paper, however, is on vulnerability as a social and societal issue. It discusses the vulnerability and instability that the disease introduced into social relationships (especially family relationships) and asks how the social and economic structures characteristic of 20th-century Finland made social relationship more susceptible or, alternatively, more resistant to the disruptive effect of a disease like tuberculosis.

Heini Hakosalo is an Adjunct Professor (University of Turku) and University Lecturer (University of Oulu) specialised in history of medicine and health. She has worked as a visiting researcher at the University College London, University of Edinburgh and University of Stockholm. She has worked on e.g. Michel Foucault as a historian of medicine and psychiatry, history of brain studies, history of women’s medical education, and, most recently, history of tuberculosis in 20th-century Finland (in the capacity of Academy of Finland Research Fellow).

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SEMINAARIKUTSU – KYSYMYKSIÄ OMAISHOITAJUUDESTA

Suomen Akatemian rahoittama Haavoittuva toimijuus -tutkimushanke järjestää Helsingissä ke 18.10.2017 yhteistyössä Suomen omaishoidon verkoston kanssa omaishoitajuuden kysymyksiä käsittelevän seminaarin. Tilaisuudessa kuullaan omaishoitajuutta lähellä olevia kokemusasiantuntijoita ja keskustellaan aihetta eri puolilta tarkastelevista uusista tutkimuksista. Seminaariin ovat lämpimästi tervetulleita sekä omaishoitotutkimuksesta kiinnostuneet henkilöt että sellaiset ihmiset, joita omaishoitajuuden kysymykset jollakin tavalla koskettavat.

Parhain terveisin,

Marja-Liisa Honkasalo ja Leila Jylhänkangas, Helsingin yliopisto

Sisko Aalto ja Malla Heino, Suomen omaishoidon verkosto

Ajankohta: 18.10.2017 klo 12.00 – 16.00

Paikka: Tieteiden talo, Kirkkokatu 6, Helsinki

Kenelle: Seminaari on suunnattu omaishoidon kunta- ja järjestötoimijoille, päättäjille, tutkijoille ja omaishoidosta kiinnostuneille

Oma tai läheisen vakava sairastuminen herättää kysymyksiä haavoittuvuudesta ja pärjäämisestä yhteiskunnallisessa tilanteessa, jossa aiemmat arkielämän toiminnot ja tutut rakenteet muuttuvat ja tulevat haastetuiksi. Hyvinvointivaltion rakenteiden murtumisen johdosta vakavasti sairaat tai vammaiset ihmiset ja heidän omaisensa joutuvat selviytymään entistä enemmän vailla julkisen hoivan suomaa turvaa. Merkittävä osa suomalaisista hoitaa säännöllisesti läheistään rajallisten resurssien puristamassa arjessa, jossa omaishoidon oletetaan mahdollistavan kotona asumisen huolenpidon ja hoidon tarpeesta riippumatta. Haavoittuva toimijuus -tutkimushankkeen ja Suomen omaishoidon verkoston yhteisessä seminaarissa keskustellaan uusimman tutkimuksen ja kokemusasiantuntijuuden pohjalta omaishoitajien ja heidän läheistensä olosuhteista ja hyvän hoidon mahdollisuuksista. Keskustelemme myös omaishoitajan toimijuudesta moniselitteisenä ja hauraana, mutta jatkuvasti uutta luovana maailmassa olemisen tapana.

Ohjelma

12:00 Seminaarin avaus, Marja-Liisa Honkasalo, Suomen Akatemian Haavoittuva toimijuus-hankkeen vastaava tutkija, dosentti, Helsingin yliopisto ja Sisko Aalto, puheenjohtaja, Suomen omaishoidon verkosto

12:15 Omaishoidon arki, Ulla Tikkanen, VTT, Kauniaisten kaupunki

13:00 Muistisairaan ihmisen omaishoitajuudesta, Leila Jylhänkangas, FT, PsM

13.45 Kahvitarjoilu

14:15 Kokemusasiantuntijat ääneen: Nuoren hoivaajan kokemukset, Kirsi Hokkila Näkökulmia erityislapsen vanhemmuuteen, Susanna Saanikari

15:00 Hyvän hoidon ulottuvuudet, Jari Pirhonen, FT, Tampereen yliopisto

15:45 Loppukeskustelu ja seminaarin päätössanat, professori Marja-Liisa Honkasalo

Esitysten jälkeen on varattu 10–15 min. aikaa kysymyksille ja keskustelulle.

Ilmoittautumiset 6.10.2017 mennessä: leila.jylhankangas@helsinki.fi